Shingles Post your experiences, what helps what doesn't what is the best medical field for help?

HMFICDICK's Avatar
Well I got another nerve block. It is a great help. It is much better than it was before. I still have a shooting pain from my back to the groin and the leg to the knee. While the pain in less i still need the oxycodone to kill the pain from the shooting pain. It really gets me .... I take 300 Lyrica morning and night, along with a fentenyl patch and I still need oxy to help kill the pain. God I wish that I could just stop taking anything. I tried Acupuncture and it reversed about two months of progress. I would be happy to get info that may change my opinion of acupuncture. I guess the only way to get over or out do this damm pain is to just start ...Not giving in to the pain that is trying to get me to take the pain pillls.
HMFICDICK's Avatar
I am still dealing with the nerve damage left by the shingles. I keep telling yall to get a shot... ok i will never forget the help from you guys. GOD BLESS YOU ALL
HMFICDICK's Avatar
I am still dealing with the nerve damage left by the shingles. I keep telling yall to get a shot... ok i will never forget the help from you guys. GOD BLESS YOU ALL
Keep us updated HMF and thanks for sharing. Like I wrote earlier, my Grandfather told me he'd rather have another heart attack than another shingles outbreak.

Fight the good fight.
HMFICDICK's Avatar
WELL, I got a cold or at least an ujpper resperateory illness. so I went to the doctor and got a prescription for some antibotic and inheaqler, more stuf I have to take along with all the other junk I have to take. ...Why cant i get a simple rx and not have tho wait and gewtr it over4 with. surprisingly it has not been too painfull during the other problem. I just hope i live till it s gone and I can live a regular life. The shingles keep on hurting and hurting.
PiperPosh's Avatar
I had a shingles outbreak a couple years ago, after the love of my life broke up with me and got engaged to someone else. I also got pneumonia. So, it's not only older people who get it. Younger people in times of stress are susceptible, too.
I took Valtrex/Valcyclovir. It went away in about a couple months. Mine happened on my lateral left T5 dermatome. In other words, about the middle left side of my back. It was painful. I learned to go without bras and never went back to wearing them.
Alcohol helped with the pain a bit. I didn't have tummy upset due to the antiviral, but I'm not prone to stomach problems.
HMFICDICK's Avatar
I wish I could have shaken off the nerve damage as quickly as you did. Glad you got rid of it. It can really mess up your life. It has changed my life a lot. You folks who havent had it get your shingles shot. Thank you for contributing your experience. Plus you look Cute.
HMFICDICK's Avatar
I am going through a long experiece of nerve damage, My gift from shingles is bunch of nerve damage which i must take all kinds of drugs to live with the damm pain. So I have received two nerve block treatments which have releived the pain very much. However, you are only allowed xxmilligrams of steroids per year. so what to do? Well I try to NOT take my oxy pills as much as possible tosave them for the time when my last nerve block wears off. I have found that when I hold off taking a pill, my body, does help reduce the pain with natural endorphins. I know this sounds strange but they do seem to help. I notice that when i lie on the side of the affected area it seems to help to reduce the pain and I can sleep.. I would gladly send this pain to obama if i could but God in his wisdom does not allow that . . Anyway This damm pain continues.If you find a way around it I would love to know.. with all the people out there surely someone has found a better thing than not taking my pill !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!! !
HMFICDICK's Avatar
Well here I am at one year of shingles pain and counting. I have tried wishing it away, It doesn't work. I have been getting more and more tired. Not just tired of the pain, but tired almost all the time. I Finally figured out it is the LYRICA. It starts out really blowing your mind and helping relieve the pain. As it continues you get more and more tired to the point of being incapacitated tired. I Have decided to try to get off the lyrica, completely if possible. I would rather take oxycodone than be tired all the time. My pain doctor says we have to get it to a point where the lyrica is helping the pain but not making me tired all the time. For me, If i can get off of it completely I will be happy. Those are BIG words I know, but I am going to try for totally off the stuff. My first step is a reduction from 300mg morning and nite to 200mg morining and nite. we will see how that goes. Happy Trails
HMFICDICK's Avatar
Ok I have gotten from 300mg morn and evening to 150 morn and evening. I have not noticed significant difference... Not that there is no difference, just not a big enough difference to warrant continuing with 300mg per day. Of course there is a difference, the damm stuff is really addicative. I know there is a difference , but it is just not that great of a difference to make taking that amount of lyrica worth while... I may be different from other people, in that the lyrica does not produce a large enough change in the pain relief. I may be different than others,but you should all check what REaLLY CHANGES WITH LYRICA, vs what you THINK changes the effects of lyrica... As with all drugs that influence the body, you must be very carefull. IT CAN KILL YOU. BE CAREFULL. I love all you out there and don't want any of you to get addectided to anything, even coffee. .
StopShort's Avatar
I had shingles about 3 years ago. Mine was on my forehead above my right eye and went about a quarter inch into my scalp. I already shave my head bald so it was very visible. I had no clue what was happening. I just knew whatever I tried didn't work. Finally, my GF made me go to the doc. I went to a dermatologist because I thought it was just a really bad rash. She looked at it and right away told me I had shingles.

It had even started to effect my right eye. She put me on a really heavy dose of Valtrex and sent me to an ophthalmologist to check out my eye. Both docs were great and got me find up good. The pain from the shingles stopped in about a week. But of course the visual scarring and nasty puss look remained for a few weeks.

The nerve damage was bad for about a month after the skin healed. I used capsaicin cream to help with the nerve damage. It's supposed to be just for arthritis but I read several articles that said it helped. It helped me.
I've written you before with some suggestions....sorry you are still struggling.
Please research CBD....I highly recommend https://www.bluebird-botanicals.com
Legal in all states. I think in your case it is at least worth trying.
Call them and they will give you some direction.
SkyDriver's Avatar
I still get complete relief whenever I feel the tingling on my chin an burn up the right side of my face by taking 2000mg lysine. Prevents the outbreak I used to get on my chin.
HMFICDICK's Avatar
I was given Lyrica to take for this damm shingles nerve damage. I started on 50mg/twice/day and quickly elevated to 300mg/2/day. I was constantly tired and could fall asleep standing up. I have since reduced it to 100/2/day on my own...and I have much fewer problems with falling asleep. I really have not NOT noticed any difference in pain levels. When I told the pain doctor this he threw a fit and said i must continue the Lyrica or he could not prescribe the oxycodone or fentenyl patch... this says BIG PHARMA has their hand in the prescribing and want to make more money. Anyone else have this situation?.. I still have wierd dreams from the Lyrica. I started taking 2000 Llisine per day and when the two large containers i have are done I will report on effectiveness. I find that when I take something like that it is when I stop that i find out if it was working. I am waiting now to get a nerve block. The nerve block has the greatest effect on pain of all the treatments/medications/incantations that i take. What I need at this point is a CURE for the nerve damage, since the shingles part is gone, I am left with the mess it made to my nerves. Get your shingles shot or hang around with kids who have chicken pox.
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